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  • Writer's pictureNicole

Josie's "Songs of Love" performed at an Allman Brother's Tribute

Gotta Let Your Soul Shine.....Shine 'til the break of day.

Josie's teacher has been sending me some photos of our little school girl. She writes, "Josie brings so much joy to our classroom. From the minute she arrives, she's got us all laughing." That's my girl. Life isn't what we planned, right? We sure didn't plan that Josie wouldn't be able to walk into her kindergarten classroom by herself or talk to her friends, but if she can laugh every day and be someone who brings joy to those around her, well, she's doing just fine.

The music reference of this post is "Soulshine" by The Allman Brother's Band.

Soulshine is one of my all-time favorite songs. It's originally an Allman Brothers tune, written by Warren Haynes with vocals by Gregg Allman. Warren's kept it strong with his Gov't Mule version. Get this...

In two nights in NYC, there will be a benefit concert celebrating the 20th anniversary of a beautiful foundation called A Song of Love Foundation.

It's a non-profit organization that is dedicated to creating professional, uplifting songs for children going through a tough time - either medically, physically, and/or emotionally.

For this event, they've chosen Josie to be the recipient of the 27,000th Song of Love!!

Pretty amazing, huh?

It gets better... the event is a concert featuring the music of the Allman Brothers performed by some incredible artists like Scott Sharrard, Jackie Green, Scott Metzger, Marc Quinones, Shawn Pelton, Pete Levin, and Brett Bass. Two full sets of The Allmans. There are just so many incredible songs. I mean, Whipping Post, Midnight Rider, Blue Sky, In Memory of Elizabeth Reed, Jessica, Melissa.. The songbook goes on and on.

But this is why it's so personal and meaningful..

Before the sets kick off, the entire audience will be given the lyrics to the brand new Song of Love.. Josie's song! Josie is going to have her own song! We're so moved by this and just so grateful for every opportunity to help raise awareness for Foxg1.

Thank you so much Songs of Love! Josie has given me a new definition of Soulshine. She speaks and loves through something so much greater than words and body language. It's something I don't know that I'll ever have the words to describe, but she sure let's her soul shine.

Let your soul shine, It's better than sunshine, It's better than moonshine, Damn sure better than rain. Lord, now people don't mind, We all get this way sometimes, Gotta let your soul shine, shine till the break of day.

Post "Songs of Love" Event update!!

HERE it is!!! This is Josie hearing the recording of her very own Song of Love for the first time!! I think she loves it!

This was the lyrics on the stage for everyone to read!

Oh and here is Josie with her new friend in school, Jasmine. Note their hands:

Josie: Oh girl, Hillary crushed the Donald in round one of the debate!

Jasmine: But that red pants suit? A little much.

Thank you for following Josie's Journey.

To learn more about FOXG1 syndrome please visit


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