Nicole
Team Josie's Race to a Cure: You are a circle of good in the world
Since I cofounded the FOXG1 Research Foundation in 2017, "Team Josie" has helped us achieve incredible things. We started with nothing,...
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Josie's Journey
Through her mama's voice, along the road to find a cure for FOXG1 syndrome
Nicole
- Oct 5
- 3 min
Visiting the FOXG1 Lab at the University at Buffalo: A FOXG1 Family Affair!
When we got Josie’s FOXG1 syndrome diagnosis in 2014 there were fewer than 100 people in the world known with this condition and there...
Nicole
- Aug 17
- 4 min
A FOXG1 Boy Shows Us That Josie Can Read - and maybe write!
After nearly 12 years, I was finally shown how Josie could communicate with us - by a boy who also has FOXG1 syndrome. I’m about to tell...
Nicole
- Jun 23
- 3 min
Josie Graduates from the Hagedorn Little Village School!
Movin' on up! Josie graduated from elementary school today. It might have been the cutest graduation ceremony in the history of...
Nicole
- May 22
- 4 min
Joyfully Josie Now Available on Amazon and More Major Retailers!
I have some pretty big news. I can add 'children's book writer' to my LinkedIn profile. Yup, I wrote a children’s book. I plan for it to...
Nicole
- Mar 7
- 4 min
Honk For a Cure: Goose (the Band) FOXG1 Fundraiser at the Capitol Theater
The Power of "Yes" During the thick of the pandemic in January of 2021, my then 13 year-old son Tanner had a Zoom guitar lesson with Rick...
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